Cohort Overview

This tool allows users to explore the data available in the Generation Scotland cohort using the tabs above.
Generation Scotland is a research study looking at the health and well-being of volunteers and their families. We invite our volunteers to answer questionnaires and provide samples for genetic testing. We combine this with NHS health records and innovative laboratory science to create a rich evidence base for understanding health.
Next Generation Scotland (NGS) launched in May 2022 to recruit an additional 20,000 new participants to the cohort. Original GS cohort members have been contacted with the option to move online to complete new questionnaires so there is some overlap between the original cohort and NGS participants. Data from new NGS participants will be available to researchers in due course.
Further information about this cohort, details of the application process, and conditions for access are available at the study website: https://www.ed.ac.uk/generation-scotland/for-researchers

If you have further questions about the data available please contact us at: gen.scot@ed.ac.uk

Summaries include original GS participants only. NextGen participants will be added in due course and are briefly summarised in the Next Generation Scotland tab.
Total Volunteers 24,067
Total Families 6,862
NHS Linkage 22,385 (93%)
GWAS Data 20,019 (83%)
Methylation 19,055 (79%)
Proteomics 18,826 (78%)

Demographics

Demographic summaries include original GS participants only. NextGen participants will be added in due course and are briefly summarised in the Next Generation Scotland tab.

Age and sex was self-reported in the baseline questionnaire.

Derived from postcode.

Derived from postcode.

Educational attainment was self-reported in the baseline questionnaire.

Smoking status was self-reported in the baseline questionnaire.

Ethnicity was self-reported in the baseline questionnaire.

Derived from postcode.

Disease Cases by ICD10 Code

Review the cases of ICD10 disease codes in General/Acute and Inpatient Day Case dataset (SMR01) for Generation Scotland participants. Bars can be subset to show the proportion of cases by sex, age, GWAS availability and incident cases (if the diagnosis was made after an individual's sample was collected at recruitment).
Summaries only include the first occurance of a given ICD code per individual.

Diseases with <10 cases will not be displayed. Breakdowns with <10 individuals in any category will not be displayed.

ICD10 Code List

Disease Cases by CALIBER Phenotype

Review the cases of CALIBER diseases in primary and secondary care within the GS dataset. Bars can be subset to show the proportion of cases by sex, age, GWAS availability and incident cases (if the diagnosis was made after an individual's sample was collected at recruitment).
Summaries only include the first diagnosis of a given disease per individual.

Diseases with <10 cases will not be displayed. Breakdowns with <10 individuals in any category will not be displayed.

CALIBER Phenotype List

Prescriptions

Review the prescriptions from the Prescribing Information Service (PIS) dataset. Bars can be subset to show the proportion of cases by sex, age, GWAS availability and incident cases (if the diagnosis was made after an individual's sample was collected at recruitment).
Summaries only include the first occurance of a prescription of a given drug per individual.

Prescriptions with <10 cases will not be displayed. Breakdowns with <10 individuals in any category will not be displayed.

BNF Drug List

SCI-Store Lab Tests

Review the lab test results within the GS dataset. Bars can be subset to show the proportion of results by sex, age, GWAS availability and incident results (if the diagnosis was made after an individual's sample was collected at recruitment).
Summaries only include the first occurance of a lab test per individual.

Lab tests with <10 cases will not be displayed. Breakdowns with <10 individuals in any category will not be displayed.

Lab Test List

Participant Filter Tool

Total Participants

Omics Data

GS Participant Type

Next Generation Scoland data will be available soon

Demographics

Re-Contact

Method of Re-Contact

Re-Contact Study Participation

Other

Variable Search Tool

Linked Data Summary

Dataset Overview

GS Publications Summary

Interested in gaining access to our research data? Follow the link to read about requesting access and see details about our access policies. https://www.ed.ac.uk/generation-scotland/for-researchers/access

For enquiries about Generation Scotland please contact us by email at gen.scot@ed.ac.uk

or phone 0131 651 8718
Generation Scotland
University of Edinburgh
Institute of Genetics and Cancer
Western General Hospital
Crewe Road South
Edinburgh, EH4 2XU